Organizations Join the Fight in Finding a Cure for Muscular Dystrophy

In today’s world, there are a wide variety of diseases that have been identified, yet they may still be shrouded in mystery, or citizens simply do not understand the severity and how many people have been affected by a disease. Such could be the case for muscular dystrophy, due to the fact that a quarter of a million kids and adults are currently said to be living with the disease. 

It is highly likely that many have heard of someone else with the disease, yet there may still be large gaps in society's understanding of the ailment.  For various groups and organizations across the globe, this ideal serves as the very foundation by which they base their efforts.  With more individuals educated about the condition, the more help there could be towards further research and progression towards the many on this planet that currently must suffer from the ailment.

Organizations joining the fight

As the years progressed, there has been a growing awareness for the misfortune and potential hardship that any type of muscular dystrophy can bring on.  The growing spotlight on the condition has been thanks to the tireless efforts of various organizations across the nation and the globe.  Each organization has had a different approach in how they strive to bring meaning and goodness to the muscular dystrophy community, whether it be sponsored walks, the “make a muscle” campaign,  as well as a variety of other efforts.  While each organization differs, they all have the same intention, which is to provide research and support for those suffering from muscular dystrophy in their day to day lives.

Of the cornucopia of organizations, some of the groups that have formed to fight for the cause have included the Muscular Dystrophy Association (MDA),  National Organization for Rare Disorders (NORD), Parent Project Muscular Dystrophy, and Cure Duchenne.  Each organization's site highlights the progressive research now being done, and also gives individuals the ability to donate to further the research being done for the various types of muscle dystrophy.  Most sites will also announce their upcoming events to promote awareness for the condition, showcasing a number of galleries for viewers to recognize their efforts in fighting for the cause of curing muscle dystrophy.

One unique organization, based in India, proves to be an interesting group, in that the founding of the organization came with a unique story. The Muscular Dystrophy Foundation India, or MDF India, was developed by woman whose child had been diagnosed with Duchenne muscular dystrophy and had passed away due to the ailment.  The founding of the organization was done with the sole intent of providing children with muscular dystrophy, “all the good things that she was able to provide her son and all those that she wanted to, but could not.”