Cleft lip and cleft palate are birth defects that cause slit in the upper lip, the roof of the mouth (palate) or both.
These malformations occur when facial structures bind partially during fetal development.
It may occur without obvious cause or due to inherited genetic conditions.
Surgeries can repair cleft lip and cleft palate. Most cases require a number of surgeries to improve function and achieve near normal appearance.
Your child's cleft lip and cleft palate are usually diagnosed soon after birth and their symptoms are:
A rare malformation that occurs in the muscles of soft palate (back of the mouth that is covered by mouth's lining) is called submucous cleft palate.
The signs and symptoms of submucous cleft palate, which are detected later, include:
Your doctor normally detects a cleft lip and cleft palate at the time of birth and s/he can immediately start necessary medical care. Talk to your child’s doctor if your baby develops signs and symptoms of a submucous cleft palate.
Partial or no fusion of tissues in the lips and palate is the main cause of cleft lip and cleft palate.
In a normal case, the fusion occurs during the second or third months of pregnancy.
The exact reason behind this incomplete or missed fusion is unclear but it is believed to occur due to a combination of various genetic and environmental factors.
A baby can inherit the cleft-causing gene from either father or a mother while some babies predisposed to this condition develop cleft palate only after being exposed to some environmental triggers.
Diagnosis of a cleft lip and a cleft palate is made shortly after birth without employing any specific tests.
If your child has cleft lip, cleft palate or both, you'll be referred to specialists who can treat the condition of your child.
Getting prepared for the visit can optimize the therapy and help make the visit more fruitful. List out all the symptoms.
Write down the key medical information. Write down the names of all medications, vitamins or supplements taken during pregnancy.
Some typical questions can be:
A clear talk with your doctor can optimize the therapy and improve the outcomes. Prepare yourself to answer some essential questions from your doctor.
Your doctor might ask you typical questions like:
Ultrasound before birth can show your baby’s cleft lip and cleft palate while the baby is still in the womb. It is easier to detect cleft lip if the fetus is 13 weeks or older.
Ultrasound may not effectively detect a cleft palate not accompanied by a cleft lip. If cleft is observed during prenatal ultrasound, your doctor may perform amniocentesis (amniotic fluid test).
Your doctor, with the help of amniocentesis, can determine if your fetus has inherited a genetic syndrome that may cause other birth defects.
The treatment for cleft lip and cleft palate is focused to normalize your child's ability to eat, speak and hear along with the physical appearance.
The care team for children with cleft lip and cleft palate includes:
Cleft palate or cleft lip is corrected by surgery. Any associated conditions are treated by medications.
Surgery can repair your baby’s cleft lip and palate. Once the first surgery is successful, your child’s doctor may recommend numerous other surgeries to normalize speech, and physical appearance of lip and nose.
These follow-up surgeries are recommended after your child turns 2 and may be repeated till late teen years. All these surgeries are carried out under general anesthesia.
Surgical techniques that repair, remodel and prevent or treat the complications include:
This surgery is performed within 12 months of age and involves sewing together the separated edges of the cleft. This surgery can affect appearance and function of the lips. Nasal repair, if necessary, is done at the same time.
This surgery is performed within 18 months of age and involves relocating the tissues and muscles to join the separated palate.
The surgeon can place small ear tubes in your child’s eardrum to avoid fluid accumulation and prevent eventual hearing loss. It is performed when the child is 6 months old.
Other surgeries that improve the physical appearance of face may also be carried out. Overall, surgeries can enhance your child's quality of life and functional abilities including ability to ear, breathe and talk.
Surgeries may increase risk of bleeding, infection, delayed healing, and temporary or permanent nerve or blood vessel damage.
Your doctor may recommend treatments to cope with complications caused by cleft lip and cleft palate. Some of them are:
In most cases, cleft lip and cleft palate cannot be prevented. A baby with a cleft obviously increases parents’ concerns about the recurrence in future child.
However, with these tips, you can level up your understanding or lower your risk:
There are different ways to adapt your child's lifestyle in coping with cleft lip and cleft palate.
Stress is normal when the gap between reality and expectations widens. Same can happen with you if your child is born with a cleft lip or cleft palate.
Here are some tips to help you handle the situation well:
There are several risks and complications associated with cleft lip and cleft palate.
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