Adalia Rose

Overview

Adalia Rose is an American internet star. She was born with Hutchinson-Gilford progeria syndrome, which is a premature aging disease. This genetic condition is also commonly known as progeria. During her early infancy stage, her body was much older than the normal age. In spite of her condition, she would always look happy in every social gathering and event.

She was able to get many followers on YouTube, where she would share her videos with her fans. She lives a normal life despite suffering from such a rare syndrome. There have been around 155 children affected with this condition since it was discovered in 1886. 

Children affected with this genetic disorder generally appear normal at the time of their birth. The signs and symptoms of progeria, such as hair loss and stunted growth, usually begin to appear during the first year of life. The average life expectancy of children with progeria is around 13 years. However, some may die at a younger age or live longer than expected up to 20 years. Most children with progeria die from stroke or heart problems. Although there is no cure for this condition, ongoing research studies show some promising treatments. 

Biography of Adalia Rose

On December 10, 2006, Natalia Amozurrutia gave birth to a baby girl named Adalia in Round Rock, Texas. She has an American nationality but with Hispanic and Latino ethnicity. Adalia has three brothers named Marcelo, Emiliano, and Niko. Her stepfather Ryan Pallante takes the role as her father since her biological father is not in her life.

Adalia became an internet sensation in 2012 after her mother launched a website and a Facebook page for Adalia to keep in touch with her friends and family. The Facebook account has many pictures and videos of Adalia. One of her most popular videos is “Makeup tutorial on my mom”, which was published on December 6, 2016. This video has more than 23 million views on YouTube. 

Facts About Adalia Rose

• Adalia was diagnosed with progeria when she was 3 months old. During this period of time, her mother noticed that Adalia was not growing normally.
• She does not attend a school like most kids her age because of her rare condition.
• Her popularity started when she was 6 years old, particularly when her mother began sharing posts and videos of her dancing.
• Adalia and her mother nearly have 2 million Youtube subscribers with more than 13.5 million Facebook page likes and over 370,000 Twitter followers.
• As Adalia’s social media sites grew, negative attention also surfaced, including harassments and death threats.
• There was a petition with 11 signatures to shut down Adalia’s Facebook page. One of the critics said that Natalia, Adalia’s mother, is making her daughter a freak show.
• Aside from singing and dancing, she also loves to dress up.
• Adalia is sometimes confused for a boy because of her bald appearance.
• On June 9, 2012, her YouTube channel was created. Her channel has over 115 million views.

About Adalia's Condition

Adalia Rose has a rare genetic disorder called progeria or Hutchinson-Gilford progeria syndrome (HGPS). This rare disorder is characterized by rapid aging in children. The condition was first described by Dr. Jonathan Hutchinson in 1886 and then by Dr. Hastings Gilford in 1897.

Hutchinson-Gilford progeria syndrome (HGPS) occurs when there is a mutation in the LMNA gene. This gene produces a structural protein called lamin A, which holds the cell’s nucleus together. According to experts, when lamin A is defective, the nucleus becomes unstable. This cellular instability leads to the premature aging of children with progeria.

Most children with progeria are born healthy. However, during the first two years of their life, they start to display characteristics of rapid aging. The signs of progeria include:

• Growth failure
• Hair loss
• Loss of body fat
• Old-looking, wrinkled skin
• Heart disease
• Stroke
• Joint stiffness
• Hip dislocation
• Generalized atherosclerosis

Despite ethnicity, all children affected with this genetic disorder have remarkably the same characteristic appearance. Most children with progeria tend to die due to heart disease or atherosclerosis with an average age of 14 years.

Life of Adalia Rose

Adalia Rose has such an attractive personality. Her hobbies include singing, dancing, and makeup. In 2012, she became one of the victims of a death hoax that circulated on a number of websites, including Facebook. However, such rumors were denied by her mother Natalia through posting images and videos of her being alive. 

What makes Adalia rose so special 

In Adalia's disorder, her body grows 6-7 times faster than it normally should. Although Adalia's mental function is according to her age, her body looks like the body of an old lady. For this reason, people often have mixed reactions upon seeing her physical appearance. 

In spite of her condition, she has become popular and received admiration because of her positive vibes. She always keeps a smile on her face despite her distress. She even urges people to enjoy life and disregard any problems that they have. She has made a special place in the hearts of many people by her brave attitude. She may have an unattractive appearance, but her fans still love and support her. 

She also lives her life as a normal kid. Very few children suffer from this rare disease that occurs in only about 1 in every 4 million births in the world. Both sexes and all races are equally affected by this disorder. Most children with this rare genetic condition do not survive after the age of 13. 

Her family says that they live day by day and try to avoid discussing issues such as life expectancy so as not to foster fear in Adalia. 

References

Meet the Kids. (2018). The Progeria Research Foundation. https://www.progeriaresearch.org/meet-the-kids/

Who is Adalia Rose? Everything You Need to Know. (2018). https://www.thefamouspeople.com/profiles/adalia-rose-29862.php

Girl, 11, with rare ageing condition racks up 170m YouTube views for an inspiring reason. (2018). https://www.dailystar.co.uk/real-life/727739/adalia-rose-instagram-progeria-syndrome-rare-ageing-condition-youtube-videos

Adalia Rose, 11, suffers from a rare genetic condition that accelerates the ageing process. (2018). https://www.nzherald.co.nz/lifestyle/news/article.cfm?c_id=6&objectid=12121886

Progeria - Symptoms and causes. (2018). Mayo Clinic. https://www.mayoclinic.org/diseases-conditions/progeria/symptoms-causes/syc-20356038

About Progeria. (2018). The Progeria Research Foundation. https://www.progeriaresearch.org/about-progeria/